Chronic Pain & Movement Avoidance: How Can I Exercise Safely?

Struggling to exercise with chronic pain, hypermobility or fatigue? This guide explains why movement can feel unsafe, how avoidance develops, and gentle ways to rebuild confidence so you can move more comfortably and predictably.

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Chronic Pain and Movement Avoidance: How Can I Exercise Safely?

last updated: 15 July 2026

Person performing a side‑lying leg exercise on a mat, showing controlled, stable Pilates movement.

Struggling to exercise or finding that movement feels scary with hEDS/HSD, fibromyalgia  or other chronic pain conditions?

 

This guide explains why movement can feel unsafe, how avoidance develops, and gentle ways to rebuild confidence so you can move more comfortably and predictably.

Quick Summary

  1. 1
    What are hypermobility disorders?
    They’re connective tissue conditions where collagen behaves differently, leading to joint hypermobility, pain, fatigue and sometimes multi system symptoms.
    Read more → What are hypermobility disorders?
  2. 2
    What does connective tissue actually do?
    It supports and stabilises the body, and in hEDS/HSD it’s often more elastic and less supportive, which can affect joints, gut, autonomic function and more.
    Read more → What does connective tissue do, and what goes wrong in hEDS/HSD?
  3. 3
    How are hEDS and HSD different from each other?
    hEDS meets specific clinical criteria for a hypermobile type of Ehlers Danlos syndrome, while HSD describes symptomatic hypermobility that doesn’t meet those criteria (but can be just as impactful.)
    Read more → What’s the difference between hEDS and HSD?
  4. 4
    Why does it take so long to get diagnosed?
    Changing criteria, lack of awareness and huge variation in presentation add to the challenges.
    Read more → Why is diagnosis so complex?
  5. 5
    How do clinicians diagnose hypermobility disorders in the UK?
    Diagnosis is clinical and based on history, examination, hypermobility scoring and ruling out other conditions, usually by rheumatology, genetics or specialist hypermobility services.
    Read more → How are hypermobility disorders diagnosed in the UK?
  6. 6
    What can I do to improve my pain, fatigue and other symptoms?
    When managing a complex, chronic condition learning self-management strategies which work for you is really important.
    Read more → What can I do at home to support myself?
  7. 7
    How can physiotherapy actually help with hEDS or HSD?
    Physiotherapy focuses on stability, proprioception, pacing and confidence, using graded, hypermobility aware exercise to support function without deliberately triggering flares.
    Read more → How can physiotherapy support people with hEDS and HSD?

I’ve lived with my own mix of chronic pain, fatigue and unpredictable flare‑ups, and I know how quickly movement can shift from feeling absolutely fine to causing pain or other problems. For years I avoided certain movements because I wasn’t sure what my body would do, or how big the payback might be. That lived experience shapes how I work as a physio – with clarity, gentleness and a deep respect for how frightening it can feel when your body stops behaving predictably.

Lived Experience

Physiotherapist, Hollie at the Gentle Physio Studio, sitting cross legged with elbows extended showing hypermobility.
Hollie, Physiotherapist, showing bendy elbows

Disclaimer: This information is for general education only & isn’t a substitute for personalised medical advice, assessment or diagnosis. Symptoms like pain, fatigue & instability can have many possible causes, so it’s important to discuss any new, changing or concerning symptoms with a qualified healthcare professional.

1. Introduction

This isn’t just a list of exercises you “should” be doing. It’s a framework for understanding why movement can feel difficult, and how to explore it safely without triggering flare‑ups.

Take what feels useful, leave what doesn’t, and move through it in whatever order works for your brain and your body.

2. Remind me – what is chronic pain and what causes it?

Chronic pain is common in conditions like hEDS/HSD, fibromyalgia, ME/CFS and other long‑term pain disorders. It’s defined as pain lasting longer than three months, and it doesn’t always map neatly onto tissue damage. Pain can persist for many reasons, including:

  • ongoing inflammation
  • joint instability
  • repeated aggravation of sensitive tissues
  • changes within the nervous system itself

 

One of the most important concepts here is central sensitisation: a process where the brain and spinal cord become more responsive to sensory input, amplifying pain signals. This doesn’t mean the pain is “in your head” – it means the nervous system has become more protective, which is common in chronic, multisystem conditions.

You can also read more about hypermobility and pain in my guide on hEDS/HSD basics, which helps make sense of hypermobility disorders.  

 

Infographic explaining why chronic pain can persist, showing a diagram labelled “Persistent Pain” with arrows to joint instability, ongoing inflammation, and repeated aggravation of sensitive tissues
Photo of a hand wearing a finger brace to illustrate how immobilisation leads to weakness and reduced coordination

A helpful example….

Imagine putting a healthy finger in a brace and not moving it for a day. It would feel odd when you finally bent it. Now imagine a month… or six months. It would be thinner, weaker, less coordinated, and movement would likely be painful – even though it wasn’t originally.

This is why it’s so important to explore whether movement avoidance is contributing to someone’s symptoms, and to support them in managing it safely and effectively.

Movement Avoidance is exactly what it sounds like: avoiding a movement or activity. Most research on chronic pain focuses on people avoiding movements because they’re afraid of pain, but in clinic I see that any destabilising symptom can lead to avoidance, including:

  • fatigue
  • dizziness
  • tachycardia
  • immune flares
  • joint instability


This means that when assessing movement patterns, its really important to look at the whole picture.

Avoiding movements that do cause pain or other distressing symptoms is a normal, protective response, and a positive adaptation in the short term. Pain or discomfort is a powerful educator – the body uses it to keep you safe while tissues heal or to prevent further injury.

However, if movement avoidance continues after tissues have healed, or spreads to movements that aren’t actually harmful, it can cause problems. Joints are designed to move, and movement keeps them healthy. When joints don’t access their full range for a long time:

  • range of movement reduces
  • muscles lose strength and endurance
  • coordination and motor control decline

3. What is Movement Avoidance - and why is it important?

4. When Movement Avoidance Spreads: What’s the impact?

Sometimes Movement Avoidance spreads to previously comfortable movements, a pattern known as generalisation and highlighted in studies of chronic pain and multisystem conditions.

A 2022 interview study by André & Lundberg describes how people with persistent pain often lose confidence in their bodies and begin avoiding whole categories of movement, not just the painful ones. Participants talked about feeling unsure how to move safely and trying to “find the right way to move” because their symptoms felt unpredictable.

The Meulders review makes a similar point: when pain is inconsistent or multisystemic, the nervous system naturally becomes more protective, and avoidance can spread even to movements that were previously comfortable.

When avoidance generalises, it can:

  • 1
    Reduce movement confidence
    People feel unsure about safe ways to move and be active.
  • 2
    Increase disability
    People are unable to do their normal day-to-day activities.
  • 3
    Limit participation in valued activities
    Being able to do the things that are meaningful and important is really important for good mental health.
  • 4
    Contribute to deconditioning
    As people do less, their strength, endurance and coordination reduces.
  • 5
    Worsen pain and fatigue over time
    Our bodies need to move to stay healthy and well, and reduced movement can in itself lead to worsened pain and other symptoms.

This widening pattern of avoidance is common in chronic, fluctuating conditions – and understanding it is key to helping people rebuild confidence and capacity.

If you’re starting to notice these patterns in your own body, my article on safe strength training for hypermobility looks at ideas for exploring weight training in ways that feel safe and progressive.  

5. What about Kinesiophobia?

I’m not a huge fan of this definition, but it is widely used, so here it is: kinesiophobia is defined as an “excessive, irrational and debilitating fear of movement.” (Reference: Physio‑Pedia – Kinesiophobia)

A quick context check for the Tampa Scale of Kinesiophobia:

  • developed in 1990 for chronic low back pain populations
  • not validated for people with hEDS/HSD, fibromyalgia, ME/CFS, chronic fatigue or POTS
  • predates modern concepts like central sensitisation and nocioplastic pain

In these conditions, symptoms can be variable and unpredictable from day to day. Some areas are consistently painful, others only occasionally so, and sometimes small movements can trigger unexpectedly big reactions. Under these circumstances, I’d argue that fear of movement is far from irrational, though it can certainly be debilitating. And calling people irrational without assessing the symptoms they experience during movement is probably unhelpful.

Whether or not the fear of movement is “excessive” depends on:

1) the pain or symptom level experienced during movement
2) the person’s level of tolerance (which changes from day to day)

If fear extends to pain‑free movements, it can have the impacts we’ve already discussed. If it’s limited to painful movements, then it isn’t fear of movement – it’s fear of pain, which is a different thing to unravel.

6. Fear of Pain Vs Fear of Movement

Person doing a pilates bridge at home as part of a remote physiotherapy recovery plan.

Fear of pain and fear of movement are not the same thing – and both can exist in the same person (and even the same movement) at the same time. Making this distinction helps us understand why avoidance developed and how to support someone in rebuilding confidence.

A helpful way to explore this is to:

  1. Understand why the avoidance began
  2. Identify movements limited by fear and pain/symptoms
  3. Identify movements limited by fear but not pain/symptoms
  4. Explore safe, comfortable ranges of those movements
  5. Build confidence gradually over time
  6. Support reintegration of these movements into daily life

This approach respects the reality of chronic pain while still helping people expand their capacity in a safe, supported way.

7. Is Pain When Moving Ever OK?

This is a huge (and really important) topic for chronic pain and hypermobility patients which I want to write a full article about soon so keep your eyes open for links to it on social media.

But for now, my tldr is: Yes, pain when moving is sometimes OK. Here are some strategies to try, but be warned, they are not hard and fast rules and sometimes breaking them is the right thing to do.

  • 1
    Find your safe movements first

    Is it OK to lift your arms halfway? Can you do half a squat? If not, how much can you bend your knee whilst sitting?

  • 2
    When you feel ready, gently explore towards the discomfort

    Only do short sessions and gradually build up.

  • 3
    Pain should be tolerable in the moment

    It hurts, but at an OK level. This can change — some days a 6 might be tolerable, other days it could be a 3.

  • 4
    Pain shouldn’t last long after you stop the movement

    If it keeps hurting at an intolerable level for more than 10 minutes afterwards, it was probably too much.

  • 5
    Avoid provoking a flare‑up of symptoms

    Movement shouldn’t affect your ability to do daily activities for the rest of the day or the days after.

Follow Hollie and the Gentle Physio Studio for grounded guidance you can use every day 

8. What does Generalised Movement Avoidance feel and look like?

Infographic showing four connected circles illustrating aspects of generalised movement avoidance, with icons representing feeling tense about movement, avoiding activities, holding rigid postures, and feeling physically fragile.

Generalised Movement Avoidance can show up in many ways. It might look like:

  • feeling worried or tense before attempting a movement
  • avoiding activities “just in case” they trigger symptoms
  • sticking rigidly to certain postures or positions
  • feeling unsure how to move safely
  • losing confidence in your body’s ability to cope
  • feeling that your body is fragile or unpredictable

These experiences were also described in the André & Lundberg interviews, where participants talked about decreased confidence in their bodies and uncertainty about how to move without making things worse.

9. Movement Avoidance and Exercise

Exercise becomes difficult when you’re unsure which movements are safe, or when past flare‑ups have taught you to be cautious. Many people with chronic pain, hypermobility or fatigue conditions feel stuck between:

  • “I know movement is good for me” and
  • “I’m scared of making things worse.”

 

This is where the research is helpful: both the André & Lundberg study and the Meulders review emphasise that avoidance often develops because people haven’t been given clear explanations or safe ways to explore movement. Once people understand their symptoms and have support, confidence improves.

CO: The goal is not to push through pain or force yourself into movements that feel unsafe. Instead, it’s about gentle exploration – finding movements your body can do comfortably, and gradually building from there.

If fatigue is more impactful for you than pain, my guide on fatigue after exercise in hypermobility breaks down how to adapt and modify exercise habits so they match your capacity.

Illustration showing a person with two thought bubbles expressing conflicting feelings about exercise: knowing movement is helpful and fearing it might make symptoms worse.

The goal here is not to push through pain or force yourself into movements that feel unsafe. Instead, it’s about gentle exploration – finding movements your body can do comfortably, and gradually building from there.

Be Kind To Yourself

10. What Can I Do at Home?

Even simply recognising that you might be avoiding some movements based on fear rather than pain can be helpful. Exploring movement with gentle curiosity – “I’ll see what I can do without pain, (or without pain I can’t tolerate)” – helps you understand what your body can manage today.

With variable and unpredictable conditions, your experience can feel very different from one day to the next. Challenging your body’s assumptions and recalibrating to accurate, up‑to‑date information reduces the risk of avoiding movements unnecessarily. Below are some other research-backed tools you can try.

Proprioceptive exercises
Tactile / perceptual accuracy exercises
Emotional and mental health support

11. How can Specialist Physiotherapy help?

In clinic, helping people understand movement avoidance – and how to regain lost capacity – is often an important part of treatment.

Someone might be nervous about trying a mini squat because their knees feel painful or unstable. So we start with the smallest possible range – a micro‑bend, or even practising the movement in sitting. Often, people are surprised to find that the movement itself isn’t painful, which gives us confidence to explore a little further.

We’re not pushing into pain. We’re mapping out:

  • what feels safe
  • what feels stable
  • what feels manageable
  • where symptoms begin
  • where symptoms stay calm

 

This helps us identify the range of movement that is genuinely comfortable, rather than the range the nervous system has learned to avoid. From there, we can build, stability, proprioception, confidence, strength, endurance & movement options… all at a pace that respects your symptoms, your energy, and your lived experience.

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About the Author​

Hollie Hazon-Dodd - HCPC Registered & Chartered Physiotherapist (CSP)

Hollie is a UK Physiotherapist specialising in hypermobility disorders, chronic pain, fatigue, autonomic symptoms and neurodivergence‑informed rehab. She works remotely across the UK, offering calm, paced physiotherapy for people whose symptoms fluctuate day‑to‑day.

Her approach blends clinical training with lived experience of hEDS, chronic pain, fatigue, instability and endometriosis, giving her a deep understanding of boom‑and‑bust cycles, flare‑ups and the fear of making symptoms worse.

Hollie has spent 15 years teaching movement (Clinical Pilates, Therapeutic Yoga, Shaw Method swimming and Aquatic Therapy), helping people rebuild confidence in movement.

You can learn more about her background and clinical approach on the About Me page.

 
Hollie - Physiotherapist at The Gentle Physio Studio

If this guide resonated with you, you might like to find out more about how I support people with chronic pain, fatigue and hypermobility here are some useful next steps:

If you are ready to get started, you can book a remote initial assessment with me – a 45 minute session designed to understand your symptoms, your goals, and how we can get there.

Introductory offer: £26 £45

If you’d like to get a sense of who I am and how I work, you can read more about my background, my approach, and the values that shape every session. I support people with chronic pain, fatigue and hypermobility using a calm, paced, and collaborative style – so you always know what to expect.

If you’d like to see what this work can look like in real life, you can read the stories of people I’ve supported. I’m incredibly proud of what they’ve achieved, not because of big dramatic changes, but because of the steady, brave steps they’ve taken in their own bodies.